'We are not just participants - we are in charge': the NACCHO ear trial and the process for Aboriginal community controlled health research
Couzos, Sohie, Lea, Traven, Murray, Richard, and Culbong, Margaret (2005) 'We are not just participants - we are in charge': the NACCHO ear trial and the process for Aboriginal community controlled health research. Ethnicity and Health, 10 (2). pp. 91-111.
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Objective Methodological criteria that characterise ethically sound community-based studies are often described in overviews but are rarely documented in clinical studies. Research investigating the health of Aboriginal Australians is often small-scale, descriptive and largely driven by non-Indigenous people. The 'community-controlled' model of research relating to Aboriginal peoples health is a form of 'participatory' research that shifts the balance of control towards those being researched. This paper describes the methodological issues and principles that underpin community-controlled health research; their practical application; and encourages their adoption in research involving Indigenous populations.
Design Descriptive report of the methods used to conduct the landmark Aboriginal community-controlled multi-centre double-blind randomised controlled clinical ear trial investigating ototopical treatments for chronic suppurative otitis media.
Results The characteristics of the community-controlled research model are illustrated under the headings of: setting the research agenda; research project planning and approval; conduct of research; and analysis, dissemination and application of findings.
Conclusion The 22 methodological elements which defined the community-controlled design of the ear trial may assist community groups, external research bodies and funding agencies to improve the acceptability, quality and scope of research involving Indigenous peoples. Aboriginal community-controlled organisations are well placed to lead research, which can be interventional and of a high scientific standard without compromising the values and principles of those being researched. With over 120 Aboriginal community-controlled health services (ACCHSs) across Australia, the potential exists for these services to engage in multi-centre research to realise solutions to health problems faced by Indigenous Australians.
|Item Type:||Article (Refereed Research - C1)|
|Keywords:||aboriginal health; community control; randomised controlled trial; research methodology|
|FoR Codes:||11 MEDICAL AND HEALTH SCIENCES > 1117 Public Health and Health Services @ 50%|
22 PHILOSOPHY AND RELIGIOUS STUDIES > 2201 Applied Ethics @ 25%
16 STUDIES IN HUMAN SOCIETY > 1605 Policy and Administration @ 25%
|SEO Codes:||92 HEALTH > 9203 Indigenous Health > 920399 Indigenous Health not elsewhere classified @ 51%|
92 HEALTH > 9204 Public Health (excl. Specific Population Health) > 920412 Preventive Medicine @ 49%
|Deposited On:||21 Sep 2009 10:46|
|Last Modified:||24 May 2013 00:41|
Last 12 Months: 0
|Citation Counts with External Providers:||Web of Science: 22|
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